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  1. Diagnosed with PHHI as an infant, my now 11-year-old son is having fluctuating blood sugars. What should I do about this? (21 Aug 2011)
  2. Where can we find an expert in nesidioblastosis in the New York area? Is there a way to treat it? (7 Dec 2009)
  3. My daughter has PHHI. Since she is gaining too much weight, can I give her cornflour with water at night instead of cornflour with milk? Will it still control her blood sugars? (27 Feb 2008)
  4. My baby had a 95% pancreatectomy. Her eating is very, very slow. Is this normal? Is it because she doesn't feel hungry at all? (25 Jul 2007)
  5. After having a full pancreatectomy, how badly will my digestive system be affected? Does the lack of a pancreas affect anything else? (22 Oct 2006)
  6. My daughter had a partial pancreatectomy, then seizures for many years. She was treated with diazoxide, but "recovered" after a grand mal seizure. What's her prognosis? (28 Jan 2006)
  7. Since my gastric bypass surgery, I have been having low blood sugars. Why would this be happening? (5 Jan 2006)
  8. My infant has nesidioblastosis. The doctor does not recommend a pancreatectomy, believing the condition may go away over the years. What do you recommend? (5 Nov 2005)
  9. Is there a connection between gastric bypass surgery and nesidioblastosis? Will an endocrinologist be able to help me? (13 Oct 2005)
  10. I found out two years ago that I have nesidioblastosis. How can I lose my excess weight? How can I improve my condition? (8 Aug 2005)
  11. Born with nesidioblastosis, my friend had her pancreas removed as an infant. She has recurrent stomach pain. What do you know about this problem? (18 Jul 2005)
  12. Born with nesidioblastosis, I've had diabetes for three years. Are my weight gain, acne, mood swings, and irregular menstrual cycles related to the removal of my pancreas? (16 Jul 2005)
  13. My son, who was born with nesidioblastosis, now has type 1 diabetes. What is the likelihood that my next child will have nesidioblastosis? (29 Sep 2004)
  14. When I want to sleep at my friend's house, my mom acts as if she doesn't trust me and blames it on my diabetes. How do I handle this? (31 Aug 2004)
  15. My daughter had a total pancreatectomy as an infant and is insulin dependent. When do we start testing for complications? (4 Aug 2004)
  16. My 21 day old granddaughter has been suffering with hypoglycemia since birth. How can we confirm this? Is this curable? (22 Feb 2004)
  17. Is there any connection between nesidioblastosis and growth hormone deficiency or other bone disorders? (30 Dec 2003)
  18. Since it seems my son will always be on diazoxide, I am wondering what the long-term effects are. (11 Oct 2003)
  19. What is the percentage of people in the world who have nesidioblastosis? (26 May 2003)
  20. Is all this eating necessary for the oral glucose tolerance test? (26 May 2003)

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