Back to Ask the Diabetes Team DIDMOAD (Wolfram Syndrome)

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DIDMOAD (Wolfram Syndrome)

  1. Is diabetes insipidus in combination with smaller than normal optic nerves enough to point to DIDMOAD? (5 Apr 2009)
  2. A friend was diagnosed with type 1. His mother and aunt both died of Wolfram's syndrome. Even though his father is not a carrier, could he have further complications? (24 Jan 2008)
  3. My son has had hearing loss in both ears since birth. Last month, he was diagnosed with type 1 diabetes. Could he have DIDMOAD? (23 Mar 2006)
  4. My brother has had type 1 for years. His doctor says he is going blind in one eye and needs liver tests. I am in the U.S. How can I help him? (1 Feb 2006)
  5. Has there been any research into a cure for Wolfram's syndrome? I have two cousins who have it. Are their siblings at risk for it? (2 Jun 2004)
  6. My daughter has type 1. She has a hearing loss and may have Wolfram's Syndrome. What is her life expectancy? Will she get the optic atrophy? (14 Mar 2004)
  7. My 17 year old daughter has DIDMOAD. What is her life expectancy? What can we do? How do I know if I passed this to my youngest daughter? (8 Mar 2004)
  8. An optical neurologist told me my family had Wolfram's Syndrome. Should I get tested, and, if so, where would I go to get such a test? (11 Feb 2004)
  9. My 9 year old daughter has just been diagnosed with Optic atrophy. Is this the same as DIDMOAD? (30 Jan 2004)
  10. Can you enlighten me more about DIDMOAD? (13 Feb 2003)
  11. My 22 month old daughter has been diagnosed with diabetes mellitus and diabetes insipidus. (18 Oct 2002)
  12. If my daughter would decide to have children, would they inherit this condition? (28 Jul 2002)
  13. I realize that there are other circumstances that affect blood sugar levels, but the answer to three questions will be of great benefit to me. (20 May 2002)
  14. I have gastroparesis and have been unable to tolerate the medication (Reglan), but I have been told there is no other medication presently available. (6 Jan 2002)
  15. My dog seems to do fine for three or four days, but then she gets hypoglycemic, usually shortly before her next meal. Is this because we are using Ultralente? (27 Nov 2001)
  16. Is there a genetic screen for Wolfram Syndrome? (11 Nov 2000)
  17. We would like to know answers to some questions about DIDMOAD. (7 Nov 2000)
  18. My son, 11 years of age, was diagnosed with diabetes a year ago. He also has Optic Atrophy. (26 Mar 2000)
  19. We have a son with neurogenic diabetes insipidus. Last year our youngest child was diagnosed with a variant form of MSUD. (24 Dec 1998)
  20. I have heard there is a diabetes that also brings deafness. (21 Nov 1998)

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