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Children with Diabetes: Focus on Pumping

A Regional Conference and Expo
September 3-5, 2004
The Westin Grand, Washington, D.C.

Even little kids pump

Bolusing is easy

Rachel named her pump "Blossom"

Pumps are for everywhere, even the pool!

CWD kids received the first two Cozmo pumps shipped!

CWD kids proudly wear their pumps

Share pump stories with other kids

Learn important skills like matching pump covers ...

... and hiding pumps under formal dresses

View the Quilt for Life

Why Focus on Pumping?

Efficacy research has shown that using an insulin pump is one of the best ways to manage type 1 diabetes. At Children with Diabetes, many of our children (and parents) are pumpers already... while many more are simply curious about pumping, and still manage diabetes via multiple daily injections (MDI). It is our intent with this conference to offer basic pumping information to those people who are brand new to insulin pumps, and to offer more cutting-edge research information to those people who already know quite a bit about insulin pumps, perhaps wear one, and want to improve their diabetes management.

We hope that the Focus on Pumping conference will help you and your family gain a better understanding of how insulin pumps work, the current technology in pumps now available to people with diabetes, and the exciting new technology coming down the road both short and long-term. And we hope to motivate you to try a pump if you never have! Insulin pump companies will be on site providing saline pump starts to those who wish to wear a pump (or more than one) to experience what it feels like and how a pump works up close and personal. Please note that a physician's prescription is necessary for this, and details are available in the sidebar on this page.

Some very exciting faculty will be joining us, including psychologist Richard Rubin, who will explore some of the feelings and issues around Pump Anxiety. Have you or your child thought about getting an insulin pump, but you are nervous about 'being attached to something every day, all day?' You're not alone. Are you afraid a younger child might play with the pump buttons or mistakenly bolus in the middle of the night? Afraid an infusion set will hurt or will fall out? These are all things that pumpers think about at first. Dr. Rubin, along with a panel of CWD kids and teen pumpers, will share their thoughts with you and answer questions.

John Walsh, author of Pumping Insulin, a text considered one of the best overall resources for pumpers, will share a historical perspective of how insulin pumps have changed over the years and he'll join us for a peek at what is in store for future pumpers. Additionally, he will present a session on The Basics of Pumping, which is a must for anyone considering switching from MDI to an insulin pump.

Have you been reading about the cool new sensor technology on some of the pumps currently under development? Join endocrinologist Alan Schorr for a glimpse into what the future might look like. Dr. Schorr also will present Advanced Pumping Concepts for those of you who are currently pumpers and would like to gain a finer degree of blood glucose management.

Confused by all the infusion sets on the market? What's the difference between a Quick-Set vs a Tenders vs a Silhouette? And how do you know which one will work best for your child or yourself? Diabetes Educator Natalie Bellini can help you figure this out in a fun and hands-on session. Also, the pump companies will have their infusion sets available for you to look at and ask questions about... it's a great opportunity to compare, gather information, and decide what is best for you!

What about the athletic insulin pumper? Is it ok to wear an insulin pump when you are participating in an active sport like hockey, football, or basketball? And what are you supposed to do if you are a dancer or participate in gymnastics... and there just doesn't seem to be a place to even put the insulin pump? Athletic trainer and pumper Rick Philbin will discuss this, and more!

Try an Insulin Pump!

Come to the conference and try a pump! Pump companies will be offering this great opportunity for potential would-be pumpers to try a pump using saline. Anyone interested in wearing a pump (with saline) may do so Friday and Saturday at the conference. A prescription from your physician is required and must include the wording "insulin pump trial with saline."

This opportunity is by appointment only. Appointments will fill up quickly. For more information and to schedule an appointment with a specific pump company, contact the following individuals:

Val Valentino at 1-877-YES PUMP, extension 1225 or via e-mail at

Smiths Medical Deltec
Marilyn Graff at 1-800-544-4734 extension 7201 or via e-mail at

Medtronic MiniMed
Damien Ozaki at 1-818-576-4420 or via e-mail at

Experts Who Can Help

CWD has invited some of the top experts in the diabetes industry to share their ideas with you. In addition to the scheduled presentations, Richard Rubin and other faculty will also moderate discussion groups for moms and dads. This is a time to discuss anything on your mind relating to diabetes management. It's a great opportunity to network and share ideas, and interact with several of CWD's most wonderful and caring professionals!

In addition:

  • For kids and teens, there will be special sessions just for you all day both Saturday and Sunday. One area in the conference center is for kids ages 7-11 and a separate area is designated for teens.
  • These sessions are fun - they will not focus on 'just diabetes,' so they are fine for sisters, brothers, and friends to attend!
  • Teens will likely start in discussion groups in the morning (topics to be determined by the teens, of course!) and will head offsite for the afternoons after lunch. These excursions will be led by Natalie Bellini and Melissa Ringley, two veteran CWD faculty (both nurses and diabetes educators). Parents are welcome as chaperones if you'd like to come along. Some pocket money for the Metro or snacks should be provided by parents.
  • Any teen with diabetes going off-site must have a meter, insulin, and glucose along with them! Also, parents must sign a release that it is ok for the teen to go offsite with CWD staff.
  • Please note that school-aged sessions are for all children, not just those with diabetes. Sessions will include games, arts-n-crafts projects, and some outdoor activities (sitting in one place all day simply is not fun). There will be some discussion about taking care of diabetes and some discussion about insulin pumps - only if the children are interested. We try to 'play it by ear' with our younger group, and follow their lead as far as what is interesting and exciting for them to do at any given time of the day. Again, our faculty and staff have experience with this age group and have worked for years with school-aged kids in CWD conferences. Parents are welcome to help or observe at any time!
  • Children younger than age 7 may participate in the school-age sessions if they are accompanied by a parent. We do not have childcare for this event.

The Program

The program is designed to run 3-4 sessions simultaneously during most of the weekend. There will be two-day educational tracks for adults and parents of children with diabetes, school-age children (ages 7 and up), and teens. Sessions will end on Sunday afternoon. Participants who would like to continue to visit and interact with other CWD families are encouraged to stay over Sunday night and relax poolside (if the weather cooperates!) or enjoy the many attractions that Washington, D.C. has to offer. Monday is Labor Day (a holiday for most people)! Please note that all conference participants under the age of 18 must have a parent or adult guardian with them during the entire conference (i.e., teens and children should not be dropped off to participate while parents go elsewhere). This is for health and liability reasons, and there will be no exceptions.

The Conference Venue

All conference sessions will be held at The Westin Grand, located at 2350 M Street NW in Washington, D.C. Located in the fashionable West End of the city, the hotel is equal distance from Georgetown and the White House. The boutiques, cafes and sites of historic Georgetown are moments away from the Westin Grand. To access the historic monuments, memorials and Smithsonian museums of our Nation's Capital, the Westin Grand is conveniently located three blocks from the Metro subway system. Guest rooms within the CWD room block are generally king or double-double rooms. Single and double room rates are $129 per night plus tax. Rollaways and more than two adults per room are extra. Guest rooms are equipped with the Westin Heavenly Beds, bathrooms with sunken bathtub, separate enclosed showers, hairdryers, vanity mirrors, and custom amenities. Each room has an executive-sized desk with a dual line telephone featuring voice mail and data port. Each room has a coffeemaker with Starbucks coffee and an in-room safe large enough to accommodate lap-top computers. Additionally, the Westin Grand offers an outdoor swimming pool and deck area as well as a fitness center.

To make your room reservation, please call 800-937-8461 or 888-627-8406. Identify yourself as being with the Children with Diabetes conference. All reservations require a credit card guarantee or advance deposit equal to one night's room and tax. This will be charged to your account at the time the reservation is made. Deposits are fully refundable for rooms cancelled more than 72 hours prior to arrival (you must have a cancellation number).

Fun Things To Do

The Focus on Pumping conference will kick-off Friday evening at 7:00 p.m. with an Exhibitor's Reception. This is a great opportunity for all conference participants (kids and teens, too) to meet each other, browse the exhibits, have some great conversation, and enjoy some yummy hors d'oeuvres in the Promenade and Courtyard of the hotel.

Saturday and Sunday mornings, breakfast will be served in the conference area from 8:00-9:00. Exhibits will be open to browse while you sip that second cup of coffee. Sessions will begin promptly at 9:00. Healthy snack breaks will be offered mid-morning and mid-afternoon in the exhibit area.

Saturday and Sunday at lunch, all conference participants will enjoy a healthy buffet. Again, this is a great time to finish up with your lunch and head back to the exhibit hall to have discussion and look at some pump technology after learning new information that morning. The lunch break is 90 minutes; plenty of time to eat, share some great conversation, perhaps get a short walk and fresh air, and come back for an afternoon of exciting breakout sessions. Teens will head offsite after lunch with the teen leaders, while the kids will regroup for their afternoon activities at 1:30. The exhibit hall will close after lunch on Sunday.

The CWD Quilt for Life

The Quilt for Life will be displayed on Friday, September 3 from 4:00 to 9:00 p.m. This is the only day during the conference that the quilt will be shown. Please come and view the Quilt. It is truly extraordinary and is guaranteed to be an emotional experience for everyone.

Information on the Airport and Ground Transportation

Conference participants may fly into the Ronald Reagan National Airport. Various shuttles and taxis provide transportation to the Westin Grand.

DC 2004: Focus on Pumping
Conference - Registration - Program - Faculty
Sponsors - Exhibitor Information
Report from the Conference - More Photos
Presentations from the Conference

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