Anastasia Albanese-O’Neill, PhD, ARNP, CDE, is a clinical assistant professor of pediatrics at the University of Florida, College of Medicine. She transitioned from a career as a marketing executive at Southwest Airlines to one in diabetes research and clinical care in order to fulfill a promise to her daughter, who was diagnosed with type 1 diabetes in 2002. Anastasia conducts research on the role of technology in type 1 diabetes management, and her interests include mobile (mHealth) diabetes education and artificial pancreas technologies. She has co-authored manuscripts published in academic journals including Diabetes Care and The Diabetes Educator, and is a board certified diabetes educator and pediatric nurse practitioner. Anastasia has long been an active diabetes advocate, and has provided briefings at U.S. Senate meetings, at the White House, and at the National Press Club. She holds BSN, MSN and PhD degrees in nursing science from the University of Florida, and BA and MA degrees in political science from UCLA. Anastasia lives in Gainesville, Florida, with her husband and two children, and intends to retire the moment a cure for type 1 diabetes is discovered, but not a moment earlier.
Henry Anhalt, DO, is a pediatric endocrinologist and the CMO of the T1D Exchange, a nonprofit organization that has created a new paradigm fostering collaboration among patients, physicians, researchers and industry to speed discovery of better therapies for type 1 diabetes. Prior to his appointment at the T1D Exchange, he held numerous executive positions in the medical device and biopharmaceutical industries. He was CMO and medical director of the Artificial Pancreas program at Animas and was then recruited by Sanofi to lead its nascent T1D program and the North American Medical Affairs strategy for their new basal insulin. Dr. Anhalt has held numerous executive leadership roles in the Pediatric Endocrine Society and the Endocrine Society, currently serving as chair of the Hormone Health Network, and a member of the Society’s Knowledge Integration Task Force. He has published over 30 peer reviewed papers, four textbook chapters, and dozens of abstracts. Dr. Anhalt is president of the board of trustees at camp Nejeda, a camp for children with diabetes in Stillwater, NJ. He continues to see patients one day a week.
David Baidal, MD, is Assistant Professor of Medicine in the Division of Endocrinology, Diabetes & Metabolism at the University of Miami Miller School of Medicine. He is also a member of the Diabetes Research Institute's Clinical Islet Transplant Program. Dr. Baidal had completed his internal medicine residency at Jackson Memorial Hospital, University of Miami and was a part of the DRI's clinical transplant team, training under Drs. Rodolfo Alejandro and Camillo Ricordi. He then went on to complete a clinical and research fellowship at the Beth Israel Deaconess Medical Center / Joslin Diabetes Center in Boston. Following his fellowship, Dr. Baidal rejoined the DRI's Clinical Islet Transplant Program to focus on managing islet transplant recipients, developing new clinical islet transplant trials, and testing novel therapies for the treatment of type 1 diabetes.
Alisa Barksdale, MPH, served three years in the U.S. Peace Corps in West Africa as an Agriculture Extension Agent. During her time, she focused on grassroots health initiatives and served as an interpreter for obstetric surgeons. Her experiences lead her to pursue further education in the realm of preventative and public health. After completing her Master's in Public Health, she pursued positions with an emphasis on prevention and health promotion before accepting a position with the American Diabetes Association. As a member of the Programs & Mission Delivery team in Southwest Florida, she had the opportunity to be involved in many of the ADA's community outreach initiatives, advocacy, and professional education. Now joining the Type 1 Programs Team, Alisa will be working on programs reaching all those living with T1D.
Amy Bevan is the Communications and Community Engagement Coordinator at T1D Exchange. As the parent of a young child living with type 1 diabetes, Amy uses her personal perspective to engage with the organization's online community at myglu.org and writes various articles, research summaries, questions of the day and other content for the Exchange. Amy is a nationally published journalist and has written professionally for a variety of businesses and organizations.
Diagnosed at age 8, Sam Billetdeaux has always been determined not to let diabetes get in the way of his ambitions. While those ambitions have changed over the years, the determination hasn't. Sam, now 26, lives in Brooklyn with his girlfriend Grace and his FFL Ben, whom he met over 10 years ago on a CWD Youth Ambassador trip to Italy. He enjoys biking with friends, going to the dog park, and seeking out the best pizza/ramen/coffee/brunch in New York! Sam will graduate from the Institute of Culinary Education in July 2016.
Possessing over 25 years of professional experience in health care government relations activities focused on diabetes, Tom Boyer currently serves as director, government affairs for Novo Nordisk Inc. The focus of his work involves handling government affairs issues for the company before elected officials and regulators in the western half of the United States. As of early May 2016, authorship credits over the course of his career include over 75 health insurance, Medicare, Medicaid and related laws directly credited with helping families affected by diabetes. Working directly with the diabetes community he helped convince President Bill Clinton and Speaker Newt Gingrich of the need to improve diabetes coverage for the Medicare population, wrote the legislative language to implement this aim and oversaw the public affairs efforts credited with achieving the benefits. He worked more recently with Members of Congress including then Congressman, now Governor Inslee and the Bush Administration to create and pass legislation providing coverage for diabetes needs within Medicare Part D, which is the prescription drug insurance program for America’s senior citizens.
Bruce Buckingham, MD, is a Professor of Pediatric Endocrinology at Stanford Medical Center. His research interests have focused on continuous glucose monitoring in children. He is Principal Investigator at Stanford for DirecNet, an NIH sponsored multicenter study group which evaluates continuous glucose sensors in children. His current work focuses on the use of continuous glucose sensors in real-time, and the development of a closed-loop. These efforts are being funded by the JDRF and NIH and are currently focused on preventing nocturnal hypoglycemia and rapidly restoring metabolic control at the onset of diabetes.
Denise Charron-Prochownik, PhD, RN, CPNP, FAAN, is Professor and Department Chair of the Department of Health Promotion & Development within the School of Nursing at the University of Pittsburgh. Her research emphasis is theory-based intervention studies to enhance cognitive and psychosocial factors that impact health behavior and outcomes in children and adolescents with diabetes. Dr. Charron-Prochownik has received funding from NIH and the American Diabetes Association to develop, implement, and evaluate online education-counseling intervention studies regarding reproductive health and preconception counseling in adolescent and young adult women with diabetes; and her current projects are targeting Latina and American Indian communities.
Kevin Covais is an actor, singer, and diabetes advocate. He is most recognized as a Top 12 Finalist on the fifth season of "American Idol", which aired in 2006. On the show, Kevin was mentored by several award-winning recording artists including Stevie Wonder and Barry Manilow, and he placed 11th overall. Since his "Idol" days, Kevin has transitioned into acting. His credits include a lead role in the 2008 MGM comedy, "College", a supporting role in the family film, "Touchback", starring Kurt Russell, as well as a role in 2014's summer blockbuster, "Transformers: Age of Extinction". Kevin has also made several television appearances including a guest star credit on the FOX show, "Raising Hope". Disney Channel fans know Kevin best as Victor Deleseur on the hit show, "Good Luck Charlie". Kevin was diagnosed with Type 1 Diabetes at age 11 and has worked with the Diabetes Research Institute for many years. He is thrilled to be a part of Children with Diabetes again after making his first CWD appearance in 2006.
Edward Damiano, PhD, is Professor of Biomedical Engineering at Boston University. His educational training is in the areas of biomedical and mechanical engineering and applied mathematics. Over the years, his lab has been engaged in basic scientific research that combine aspects of fluid dynamics, solid mechanics, and intravital microscopy to study the biomechanics of the inner ear and blood flow in the microcirculation. In addition to his basic science research, he has also committed himself to building a bionic pancreas for type 1 diabetes. Ever since his 17-year-old son, David, was diagnosed with type 1 diabetes at 11 months of age, he has set his sights on creating and integrating blood-glucose control technologies with a vision of building a bihormonal (insulin and glucagon) bionic pancreas that David could take to college. He and his engineering team at BU began conducting experiments testing an early version of their bionic pancreas running on a laptop computer in diabetic swine in 2005 and then progressed with their clinical collaborators at the Massachusetts General Hospital through in-patient trials in adults and adolescents with T1D from 2008–2012. From 2013–2016, he and his engineering team at BU and clinical collaborators have now completed six outpatient clinical trials in adults and children with type 1 diabetes testing a mobile version of their bionic pancreas, which ran on an iPhone. With $2.5MM in donations from over 1,000 gifts from the T1D community, his engineering team at BU along with their contract manufacturers, have recently built the first fully integrated biohormonal bionic pancreas that does not rely upon smartphone technology. They call their device the iLet, in homage to the pancreatic islets of Langerhans. They recently received FDA approval to begin clinical trails testing the iLet in the outpatient setting. Their goal is to begin the final pivotal trial testing the iLet in the first half of 2017. He recently co-founded Beta Bionics, Inc., a Massachusetts Public Benefit Corporation, for the purpose of commercializing the iLet for people living with type 1 diabetes.
Andrew Deutscher is a Speaker and Vice President of Business Development at The Energy Project, a company that helps individuals and organizations fuel energy, engagement, focus and productivity by harnessing the science of high performance. His recent book, typecast: Amazing People Overcoming the Chronic Disease of Type 1 Diabetes, is inspired by his youngest boy who was diagnosed with the disease in 2009 at the age of 2. In addition to serving on multiple committees for the American Diabetes Association and JDRF, he volunteers for outreach and advocacy efforts impacting both newly diagnosed patients as well as government funding to advance diabetes prevention and treatment. His experience speaking on the topic of sustainable high performance in major corporations worldwide, has enabled him to frame diabetes care in an empowering way. Andrew graduated from Syracuse University, with a BS in Public Relations and Marketing. He lives in Atlanta with his wife and two sons.
Juan Domínguez-Bendala, PhD, is Director of Stem Cell Development for Translational Research at the Diabetes Research Institute. Before joining the DRI faculty, he worked at the Roslin Institute (Scotland, UK), known for the cloning of Dolly the sheep. Dr. Domínguez-Bendala obtained his PhD there and acquired considerable experience in the areas of nuclear transfer, embryonic stem cells, embryo micromanipulation and state-of-the-art genetic engineering techniques. Dr. Domínguez-Bendala is currently involved in several projects that focus on the use of embryonic and adult stem cells to obtain pancreatic islets, in the hopes that these newly developed cells could one day be transplanted into patients with type I diabetes. He is also currently working on new methods for long-term culture and regeneration of pancreatic stem cells. Dr. Domínguez-Bendala is a noted speaker on stem cell research and has authored numerous peer-reviewed publications, as well as the book "Pancreatic Stem Cells," published by Humana Press. In addition, he was featured among a dozen of the nation's top stem cell scientists in the first "CELLebrity" Doctors calendar to benefit research in regenerative therapies.
Lorena Drago, MS, RD, CDN, CDE, is a registered dietitian, consultant and certified diabetes educator. Lorena specializes in the multicultural aspects of diabetes self-management education and is an expert in developing culturally and ethnically-oriented nutrition and diabetes education materials. She founded Hispanic Foodways, which received the New York City Small Business Award in 2006. She developed the Nutriportion™ Measuring Cups that have the calorie and carbohydrate amounts of common foods embossed on each cup and the Nutriportion™ Hispanic Food Cards that have pictures and nutrition composition of common Hispanic foods. Lorena served on the American Association of Diabetes Educators board of directors from 2006-2010, Chair for Latinos and Hispanics in Dietetics and Nutrition. She was Past President of the Metropolitan New York Association of Diabetes Educators in 2004. Lorena won the Diabetic Living People's Choice Award in 2012. She is the author of the book Beyond Rice and Beans: The Caribbean Guide to Eating Well with Diabetes published by the American Diabetes Association. She is a contributing author and co-editor of the book Cultural Food Practices and Diabetes, published by the Academy of Nutrition and Dietetics and print communications chair for the Diabetes Care and Education Specialty Practice Group of the Academy of Nutrition and Dietetics. Lorena's new publication, The 15-Minute Consultation Guide, will be published in 2016 by the Academy of Nutrition and Dietetics. Lorena has appeared on several national TV shows speaking about diabetes management.
Bennet Dunlap, MSHC, is passionate advocate for better diabetes care. He is the father of four, two of whom live with type 1 diabetes. Like millions of Americans Bennet tries to be successful with type 2 diabetes himself. He has created a variety of social media projects including the advocacy campaign StripSafely, DrinkingWithDiabetes a resource for families sending type 1 students to college and his blog, Your Diabetes May Vary. Bennet is an integral member of the Spare a Rose / Save a Child community supporting the IDF's Life for a Child program. He is a respected participant in industry social media summits. Bennet has given patient perspectives in public testimony before the FDA's Endocrine and Metabolic Drug Committee on diabetes medication. Recently, he was a patient reviewer for PCORI. With a degree in finance from Lehigh University, Bennet pursued a career in commercial banking. Following the diagnosis of his children with type 1, his passion for advocacy grew and he earned a masters in health communications from Boston University to better serve the diabetes community. Bennet is currently a consultant helping to advance diabetes care and patient engagement.
Leigh Davis Fickling, MEd, MS, JD, is the Executive Director of the Disability Management System at Duke University. With over 18 years of experience in Higher Education Administration, Leigh has served in a variety of executive leadership roles including Dean of Students and Dean of Campus Life. Leigh's area of expertise is disability law and the implementation of reasonable accommodations in the classroom and the workplace. Leigh and her husband Jimmy are the proud parents to six year old twins, Ava and Davis. Ava was diagnosed with type 1 diabetes at the age of three in 2013. With Ava's diagnosis and the need for accommodations in elementary school, Leigh's work life and home life have merged.
As the Manager for Community Outreach at the T1D Exchange, Anna Floreen, MSW, looks forward to providing the type I online community (www.myglu.org) with resources and ongoing connectivity for people affected by type I diabetes. In 2009, Anna created and implemented the first American Diabetes Association’s Youth Leader Program and oversaw all youth and family programs across New England for three years. She received her Masters in Social Work from Washington University in St. Louis in 2009 and a bachelor of science in Psychology and Child and Family Studies from Syracuse University. Anna also serves as a faculty member for the IDF’s Young Leader’s Program. She is a Certified Product Trainer with Medtronic Diabetes and also assists as a volunteer mentor with AYUDA (American Youth Understanding Diabetes Abroad) where she has traveled to both Belize and Bermuda aiding in the production of diabetes camps and programs. Anna has had type I diabetes for over 25 years and is still a very active volunteer alumnus with the Barton Center for Diabetes Education in Massachusetts. Most recently, she participated in the Beacon Hill Bionic Pancreas Study, a clinical trial which prompted an enormous increase in online Glu membership and interest from parents and those affected by type 1 worldwide through her daily blogging describing her week-long experience as a research subject.
Deborah Greenwood, PhD, RN, CDE, BC-ADM, FAADE, is a diabetes program director for Sutter Health Integrated Diabetes Education Network and Research Scientist, in the Office of Patient Experience, Sutter Health, Sacramento, California. Deborah is a certified diabetes educator, and clinical nurse specialist, board-certified in advanced diabetes management. She is the 2016 Immediate Past President of the American Association of Diabetes Educators. Her research interests include technology enabled models of care; the emerging concept of the e-Patient and use of social media for self-management support. You can connect with Deb on social media @DebGreenwood.
Marisa E. Hilliard, PhD, is a behavioral scientist and clinical psychologist with nearly 10 years of experience in clinical care and research with young people with type 1 diabetes and their families. Her passion is promoting resilience, and her research focuses on how youth and families overcome the challenges of diabetes to adhere to treatment recommendations, experience good quality of life, and have optimal diabetes control. She is especially interested in transitional times in diabetes management, such as how family diabetes management shifts between childhood and adolescence, and how teenagers prepare to manage their diabetes as young adults. Dr. Hilliard is currently an Assistant Professor of Pediatrics at Baylor College of Medicine, in the Psychology Section of Texas Children's Hospital in Houston, Texas.
Irl B. Hirsch, MD, MACP, is professor and Diabetes Treatment and Teaching Chair at the University of Washington School of Medicine in Seattle. He received his medical degree from the University of Missouri School of Medicine in 1984. He completed residency training in internal medicine at the University of Miami, in Miami, Florida and Mount Sinai Hospital in Miami Beach, Florida and a research fellowship at Washington University School of Medicine in St. Louis. He has authored more than 170 papers, more than 60 editorials, three commentaries for The Journal of the American Medical Association, numerous book chapters and six books for patients and physicians. He is the past editor-in-chief of DOC News and Clinical Diabetes. Currently, he is section editor for Up-To-Date. Areas of interest include glucose variability, i.e. if fluctuations in blood glucose could have an impact on the complications of diabetes due to inflammation and reactive oxygen species which occurs both with hyperglycemic spikes and hypoglycemic troughs. He is currently researching the impact of glucose control on inpatient bone marrow transplant patients who have had no change in mortality over the last 20 years. With the T1D Exchange, he has become involved with the study of older patients with type 1 diabetes, especially with regard to issues pertaining to hypoglycemia. Over the years he has explored the various biomarkers of glucose and the various limitations of hemoglobin A1C. From both a research and teaching point of view, he has spent his career studying best strategies for the use of insulin therapy in both type 1 and type 2 diabetes and recently Dr. Hirsch has become involved with artificial pancreas technology. He has an interest in the use of computers in diabetes data management, how pattern recognition can be used to improve diabetes control and how glycemic variability noted on glucose meter downloads may be an independent risk for microvascular complications. These ideas have led to the funding and completion of the trial FLAT-SUGAR (FLuctuATion reduction with inSUlin Glp-1 Added togetheR). Additional past major clinical research trials include DCCT, ACCORD, STAR-1, the JDRF Sensor Trial, SEARCH, ORIGIN, and ADAG, a variety of important observations with the T1D Exchange and many more involved with insulin therapy. Dr. Hirsch is the former chair of the Professional Practice Committee for the American Diabetes Association and served as a member of the American Board of Internal Medicine.
Korey K. Hood, PhD, is Professor of Pediatrics at Stanford University where he directs NIH-funded research projects and provides clinical care aimed at promoting health and quality of life outcomes in youth with diabetes and their families. Dr. Hood actively investigates the human factors associated with the uptake of diabetes technology and works with Dr. Bruce Buckingham on his team's artificial pancreas project. Dr. Hood also serves on national committees for the American Diabetes Association and is on editorial boards for Diabetes Care and the Journal of Pediatric Psychology. Dr. Hood is the author of Type 1 Teens: A Guide to Managing Your Life with Diabetes and a recent book entitled Teens With Diabetes: A Clinician's Guide (with authors Michael Harris, PhD and Jill Weissberg-Benchell, PhD, CDE). His research, clinical care, and service are fueled by his personal experience with type 1 diabetes. He was diagnosed as a young adult and has spent more than 14 years managing type 1 diabetes. He is passionate about helping children and teens with diabetes, and their families, make diabetes a part of their lives while not letting it run their lives.
Scott K. Johnson is an experienced patient advocate. He works with a wide range of stakeholders across the healthcare environment to help them establish effective communication with the patient community. His expertise in the diabetes social media space is recognized worldwide and he advises organizations within the healthcare, food, and consumer goods industries. Today he is Communications Lead, USA for mySugr and Patient Pathways Lead in the Diabetes Division of Delta Project Management. He manages an award-winning blog “Scott's Diabetes” that reaches hundreds of thousands of people annually and co-hosts a weekly radio show. Scott is also a member of the Children with Diabetes faculty where he develops educational curriculums and content for the Friends for Life annual conference and regional events. He is on the Board of Directors for the Diabetes Hands Foundation, the Board of Directors for the Diabetes Community Advocacy Foundation, and is a founding member of Partnering for Diabetes Change, a coalition of people living with diabetes and industry representatives working to support underserved communities.
Tom Karlya, Vice President of the Diabetes Research Institute Foundation, is known throughout the diabetes community as Diabetes Dad. He's the creator/author of www.diabetesdad.org, a daily syndicated column. His daughter, Kaitlyn, was diagnosed at age 2 in 1992. In 2009, his son Rob was also diagnosed, at age 13. Tom has been introduced to the NY State Capitol, testified in Washington, D.C., and has lectured globally about being a DiabetesDad. With Kim May, a dMom from Texas, he created the website and FB page; www.GetDiabetesRight.org, a grassroots effort spreading awareness about the detection/understanding of t1 diabetes. He received numerous commendations for his work in the Diabetes Community from Hurricane Katrina to advocacy initiatives. Tom was awarded The Jeff Hitchcock Distinguished Service Award from CWD in 2008; among many other awards from groups and organizations. For 12 years, as an actor, he starred in the New York Production of Tony 'N Tina's Wedding and also at The Kennedy Center, Washington, D.C., in Summer of the 17th Doll. His film, lbs., was at the Sundance Film Festival, and he appeared in Unsolved Mysteries, Spin City, The Cosby Show, NYPD Blue, Law and Order, America's Most Wanted, Entertainment Tonight, Access Hollywood, and numerous commercials. He won 13 Telly Awards, a FREDDIE Award, and was nominated for an Emmy Award while Executive Producer of dLife on CNBC. His mantra; just "Don't do Nothing", is well known throughout the diabetes community. Tom will tell you that above everything else, he's just a CWD Dad.
Karen Kemmis, PT, DPT, MS, GCS, CDE, is a Physical Therapist, Certified Diabetes Educator, and adjunct professor at SUNY Upstate Medical University in Syracuse, NY. Within this position, she has worked at the Syracuse affiliate of the Joslin Diabetes Center for 20 years. She earned bachelor and doctorate degrees in physical therapy (PT) at SUNY Upstate Medical University and a master's degree in exercise physiology from Syracuse University. She served on the Board of Directors for the American Association of Diabetes Educators as a Director and Treasurer. She specializes in physical therapy and exercise prescription for those with diabetes, osteoporosis, orthopedic conditions, balance dysfunction, and aging adults. She presents nationally and internationally, has authored articles and textbook chapters, and is a peer-reviewer for several journals.
Gary Kleiman has been an advocate for research toward a cure for diabetes for more than four decades. Diagnosed with type 1 at age six, he has witnessed first-hand and benefited from the remarkable advances in diabetes management technologies, and has participated in several clinical trials. In 2002, he received an islet transplant at the Diabetes Research Institute, which, for the first time since 1960, freed him of insulin injections for two years. He has since only required minimal amounts of insulin to control his blood sugar levels. Gary has been involved in many roles at the Diabetes Research Institute (DRI), including as a pediatric counselor and diabetes camp board member, donor organ flight coordinator and organ procurement agency representative, among others. Today, Gary serves as Senior Director of Medical Development at the University of Miami's Diabetes Research Institute and helps lead the Institute's fundraising and public affairs activities. The Kleimans are one of the Diabetes Research Institute Foundation's founding families and remain vocal in the support of the DRI and for increased funding for cure-focused research. Gary has written for and been featured in magazines and newspaper articles and has made numerous appearances on local and national radio and television talk and news shows to discuss the impact of diabetes and research progress. Kleiman's autobiography, No Time To Lose, is an account of his extraordinary life and achievements while coping with some of diabetes' most severe complications. In 2006, he was featured in Cheating Destiny: Living With Diabetes, America's Biggest Epidemic by James S. Hirsch. More recently, Andrew Deutscher highlighted Gary's contributions and accomplishments in his book, Typecast: Amazing people overcoming chronic disease of Type 1 Diabetes.
Aaron Kowalski, PhD, was appointed JDRF's first Chief Mission officer in December 2014 and serves as a key link between JDRF and the broad diabetes community. Dr. Kowalski combines his professional experience as a scientist with his personal experience of living with type 1 diabetes (T1D) for over 30 years to help guide and champion JDRF's programs focused on creating a world without T1D. Dr. Kowalski is an internationally recognized expert in the area of diabetes technologies and has been a leader of JDRF's Artificial Pancreas Research Project, a multi-million dollar initiative that began in 2005 to accelerate the progress toward automated insulin-delivery systems. He has authored numerous articles on T1D research and was a coauthor of the landmark study in The New England Journal of Medicine that revealed the effectiveness of continuous glucose monitors in T1D management. Dr. Kowalski has traveled and spoken globally about diabetes research progress, and is known for his ability to translate science into easily understandable concepts. Dr. Kowalski has presented at many national and international scientific conferences, including the American Diabetes Association Annual Scientific Sessions, and was the keynote speaker at the 2009 Diabetes Technology Society Meeting. He has been a voice for diabetes research in the popular media, appearing on The Martha Stewart Show, dLife, Fox Business, and NPR, among others. He is often quoted in the print media, including The New York Times, The Wall Street Journal, USA Today, and People magazine. Dr. Kowalski is a member of the JDRF PEAK Program's expert panel and often speaks about the importance of exercise and diet in better diabetes control. While living with T1D, he has completed 17 marathons. Online, he often tweets (@aaronjkowalski) about exercise and diabetes and how all people with T1D can live their lives without limits. He earned his doctorate in molecular genetics from Rutgers University.
Scott Kyllo lives in British Columbia, Canada. He has two adult children, Alyssa and Chad. Their path along the diabetes road started in 1996 when his son, Chad, then age 2 was diagnosed with type 1 diabetes when they were residing in Bahrain in the Middle East. The World Wide Web had just arrived in Bahrain and it brought to the Kyllo's the safety of the CWD family. Two years later, when life was becoming somewhat comfortable and routine, Alyssa, then age 7, was also diagnosed with type 1 diabetes. Chad was also diagnosed with celiac disease in 2001. The family attended their first Friends For Life conference in 2002. Getting to meet the CWDers in person was like Christmas in July! Scott is a Chief Information Officer by day and an Aircraft Engineer by night maintaining a Piper Cherokee and a Mooney. These skills and his "Macgyver" qualities keep him running at the CWD conferences as our Information Technology and Audio Visual support person. He is a strong advocate of CWD conferences and believes anyone with a connection to diabetes should attend at least one ... although warns that the conferences are much like potato chips ... it's hard to stop at just one!
Michele Laine, ARNP, CDE, is the clinical manager of the University of South Florida Diabetes Home for Healthy Living. She received her Master's in Nursing from the University of Phoenix. She has served on the board of the American Diabetes Association and currently is on the Board of JDRF in Tampa. She has had type 1 diabetes for 35 years. Her clinical interest lies in the treatment and care of young adults with type 1 diabetes. Hershey is her diabetic alert dog who works with her in the clinic. Her center participates in various research protocols, as well as hosting the Students with Diabetes monthly meetings.
Lauren Lanning is mom of Monica, 22, dx 8/96 and Sarah, 20. Lauren became involved with CWD shortly after her daughter was diagnosed in 1996. She has been involved in the conferences since the very first gathering in Orlando in 2000, where she volunteered to make name badges. Since then, she has run Registration and then the Elementary program. This year Lauren is excited to start a new track at FFL, the Mom's Meet Ups.
Joyce Lee, MD, MPH, is a Pediatric Endocrinologist and Associate Professor at the University of Michigan Medical School. She has dual training in Pediatric Endocrinology and Pediatric Health Services Research, and her research focuses on the use of emerging technologies (mobile technology, data visualization, participatory game design, social media) and the creation of learning health systems for improving outcomes in diabetes. She is working with the Nightscout community and foundation to create a patient-driven collaborative research network focused on type 1 diabetes. Sign up for our email list to learn more about the research: http://eepurl.com/bGKk8H. You can find her on twitter https://twitter.com/joyclee and on the web http://www.doctorasdesigner.com/.
Maureen Leonard, MD, MMSc, is an Assistant in Pediatrics in the Division of Pediatric Gastroenterology and Nutrition at MassGeneral Hospital for Children (MGHfC) and an Instructor of Pediatrics at Harvard Medical School (HMS). She sees adult and pediatric patients at the Center for Celiac Research and Treatment. Dr. Leonard's research is focused on predicting and preventing celiac disease through precision medicine. Dr. Leonard grew up in Boston, MA. She obtained her medical degree from New York Medical College, completed her residency in general pediatrics at Tufts Medical Center, and completed her fellowship in Pediatric Gastroenterology at MassGeneral Hospital for Children. An associate investigator at the Nutrition Obesity Research Center at HMS, Dr. Leonard received a Master's Degree in Clinical and Translational Investigation from HMS. Her current work includes identifying biomarkers that can predict intestinal healing in patients with celiac disease, building translational models capable of predicting autoimmune disease in high-risk individuals, and working with Dr. Alessio Fasano on the NIH-funded Celiac Disease: Genomic Environment Microbiome and Metabolomic Study (CDGEMM).
Christel Marchand Aprigliano was diagnosed in 1983 with type 1 diabetes and spent her early years wishing it would simply "go away." She now devotes her efforts to many diabetes advocacy and peer support initiatives as the VP of Diabetes Patient Advocacy Coalition (DPAC), a non-profit dedicated to amplifying the diabetes voice on federal and state policies; CEO of The Diabetes Collective, Inc., which produces The DiabetesUnConference; a member of Florida's Diabetes Advisory Council, and a consultant for healthcare companies. You can find her thoughts on life with diabetes on her popular personal blog, www.theperfectd.com.
Before her young daughter was diagnosed with type 1 diabetes in 1997, Moira McCarthy had accomplished quite a bit as a nationally-competitive freestyle skier, award-winning crime reporter (she was once almost sent to jail for refusing to reveal a source and also helped solve a serial murder), author of books on golf and skiing, and one of the world's best-known ski and adventure writers. But her daughter's diagnosis presented her with the ultimate challenge: how to raise a healthy -- but still active and happy child -- and how to make a difference in the diabetes world. Author of the best-selling books Raising Teens With Diabetes: A Parent Survival Guide and The Everything Parents Guide to Juvenile Diabetes, and creator of the blog Despitediabetes, McCarthy is a well-known national diabetes advocate and speaker, and was JDRF's International Volunteer of the Year in 2007. She and her daughter have been guests on CNN Live, Larry King Live, FOX morning News, Good Morning America and on the front page of the New York Times. Her daughter, who graduated from college and settled in Washington DC (500 miles from mom!) is thriving. Their mantra: despite diabetes, you need to get busy living.
Diana M. Naranjo, PhD, is Assistant Professor of Psychiatry at Stanford, Lucile Packard Children's Hospital. As a trained pediatric and adult psychologist working in behavioral medicine, Dr. Naranjo focuses on the psychosocial needs of patients and families with diabetes. Together with the team, she aims to understand barriers and facilitators to care, what developmental demands are important as adolescent's transition to adulthood, and how to best provide services that engage young adults and their families. Furthermore, as a Latino-American and fluent in Spanish, much of her clinical work focuses on bridging the health-care gap for underserved ethnic minority patients with type 1 diabetes.
Elna S. Narula, RN, BSN, CDE, has been a longtime advocate of diabetes research, ever since her daughter was diagnosed at age nine, almost sixteen years ago. They both learned the value of involvement in trials with researchers early on, and worked together as a team advocating for accelerated progress and increased funding in Washington DC. Elna served on the JDRF Capital Chapter Board and organized the first two JDRF Type 1 Research Summits. She has a background in maternal-child health nursing and diabetes in pregnancy, and enjoyed working with families and kids running support groups and as a pump trainer and camp CDE before becoming involved in recruitment for diabetes clinical trials. For the past few years, she has been a clinical liaison and consultant to several diabetes tech start-ups and biopharma companies assisting with the launch of clinical trials and new products, while also continuing to teach group classes. She is passionate about disseminating information on advances in type 1 technology and research, and spreading awareness about resources available to those who are newly diagnosed.
Svati Narula was diagnosed with type 1 diabetes in September 2000, a few days after her ninth birthday. Her first job was with HealthCentral.com, writing a blog for teens with diabetes, and now she works full-time as a journalist at Quartz, a global business news site based in New York. Svati has participated in a handful of clinical trials for diabetes research, including the bionic pancreas project at Boston University. She's enjoyed meeting others with type 1 through Children with Diabetes conferences, diabetes camps, and other organizations, especially for support and advice on balancing blood sugars while training for endurance sports and traveling adventurously.
Graham Ogle, MD, is a paediatric endocrinologist based in Sydney, Australia. He works for Diabetes NSW as General Manager for the International Diabetes Federation Life for a Child Program. Graham graduated from the University of Sydney with First Class honours, and trained in paediatric endocrinology, doing research in growth and body composition. In the 1990s he lived in Papua New Guinea and in Cambodia working with the charity HOPE worldwide. From 2000 to 2012, he continued to oversee various health and education programs in Papua New Guinea. Life for a Child commenced in 2000. The program supports the care of 17,000 children and youth with diabetes in 46 countries. Support is provided directly to existing diabetes services. The aim is to provide the best possible care, given local circumstances, to all children and youth with diabetes, with the vision that no child should die of diabetes. Graham was awarded the Harold Rifkin Award for Distinguished International Service in the Cause of Diabetes by the American Diabetes Association in 2013. He has research interests in diabetes epidemiology, access to care, and other issues related to diabetes in less-resourced countries.
Sean M. Oser, MD, MPH, was diagnosed with type 1 diabetes just before starting college. Through medical school, graduate school, and residency, as well as through marriage, parenthood, and his professional career, he has learned to make diabetes work at each step along the way. His daughter was diagnosed with type 1 diabetes at age 7 and, since then, he and his wife, Tamara Oser, MD, have discovered Children with Diabetes and other parent and family groups. CWD and its programs have motivated him to join the diabetes online community as well, where he blogs less frequently than he would like to at t1works.blogspot.com. He is currently Assistant Professor of Family and Community Medicine at Penn State University College of Medicine. As medical director of Penn State Hershey’s Camp Hill primary care practice, he led that site to the National Committee for Quality Assurance’s highest level of recognition as a Patient Centered Medical Home, providing patient-centered, team-based, comprehensive care. He has also helped lead Penn State Hershey’s successful efforts to develop and implement their fully functional electronic health record and to help harness the power of technology in providing high quality, longitudinal care and enhanced communication with patients.
Tamara Oser, MD, is Assistant Professor of Family and Community Medicine at Pennsylvania State University College of Medicine. She is active in clinical practice, teaching both medical students and residents, and in medical education research. One of her major areas of focus is the patient doctor relationship. She has ranked in the ninety-ninth percentile nationwide for patient satisfaction and was recently named to the Best Doctors® in America. She is wife to Sean Oser, MD, who has lived with type 1 diabetes for 24 years, and is mom to twins Courtney and Jessica (age 13). Jessica was diagnosed with type 1 diabetes at age seven. She has seen firsthand that although there are challenges, diabetes is also her husband’s and daughter’s greatest strength. She blogs her family’s life with type 1 diabetes at t1family.blogspot.com.
Wendy Peacock, 44, was diagnosed with type 1 diabetes at 17 years old. She had diligently managed her blood sugar levels since her diagnosis, but began suffering with severe hypoglycemia unawareness a few years ago. A single mother with a 6-year-old son, John Paul, Wendy had to move in with her parents so they could help care for her. Desperate for a solution, she remembered seeing a news story about islet transplantation in 2002 and contacted the Diabetes Research Institute (DRI) to inquire about the procedure. Still producing some insulin, she was not a candidate for the trial but continued to follow the DRI’s progress. Wendy contacted the DRI again in 2014 after learning about the BioHub clinical trial and was selected as a candidate. She underwent the innovative procedure in August of 2015. Wendy, a contract manager for a government consulting firm, is the first patient to receive an infusion of islets within a biological scaffold engineered onto the omentum. She became insulin independent in record time following the transplant and remains free from insulin injections.
Rick Philbin, MEd, MBA, ATC, is currently responsible for Oracle Corporation's Cloud Computing and Storage Hardware Sales to Public Sector (State & Local Government) customers in the Mid-Atlantic Region within the information technology sector. He is also a consultant for medical device and diabetes companies looking to improve the lives of people with diabetes and the clinicians who treat them. Over the last several years Rick was Vice President of Sales for Asante Solutions, maker of the Snap insulin pump. Prior to his leadership role at Asante, Rick worked for 12 years at Animas Corporation/J&J as a Territory Manager, Regional Manager and East Area Field Director. His background is in Athletic Training/Sports Management and he is an individual with type 1 diabetes. Prior to joining Animas, he managed a comprehensive sports medicine center in the Washington, DC, area. Rick has been working with Children with Diabetes (CWD) for 15 years, presenting to parents, coordinating the sports programming for kids, and writing articles on the CWD website section called the Sports Corner. Rick's professional experience also includes working as an Athletic Trainer for a Philadelphia-based sports medicine center, where he worked with professional athletes from the Philadelphia 76ers and Flyers. He believes education is paramount for good diabetes management. He practices tight management of his diabetes and enjoys competitive basketball and weight training while on an insulin pump. Rick lives in the Washington, DC, area with his wife Sharon and daughter's Nicole and Andrea.
Trisha Porretti, RN, BSN, CDE, was diagnosed with Type 1 Diabetes in 1992. This diagnosis inspired her to become a nurse and a certified diabetes educator. Her area of expertise is in pediatric endocrinology and insulin pump therapy. For 15 summers she has been a nurse at Camp Coral Kids, a camp for children with diabetes. Since 2004 she has been a motivational speaker at diabetes conferences and events throughout the United States. She is the author of the book, The Sweet Blessing: My Adventures in Diabetes. She has encouraged and inspired patients to focus on the positive diabetes outcomes that are achievable with education, acceptance, faith, and humor. Trisha shares her optimistic message that laughter can lower our blood sugar!
Kathleen Quain was diagnosed with type 1 diabetes (T1D) in 2000, when she was six years old. She recently earned her Bachelor's Degree from Stockton University and now serves as the Program Assistant for The College Diabetes Network's Off To College program, which provides high school students, their families, and their clinicians with the information, tools, and resources to help ease the transition from home to college.
Liz Robinson, MS, PA-C, is a physician assistant practicing outside of Philadelphia. She has specialized in high risk obstetrics for over 15 years, with a strong focus on type 1 diabetes in pregnancy. Her interest in type 1 diabetes began when she met her husband, who was diagnosed as a teenager. Her passion was further fueled when her daughter was diagnosed with type 1 diabetes at four years old. Liz takes pride in using both her clinical skills and personal experience to help her patients achieve healthy, happy pregnancies.
Tami A. Ross, RD, LD, CDE, MLDE, is a registered and licensed dietitian, certified and licensed diabetes educator, and a nationally recognized diabetes and nutrition expert with over 25 years of experience in a variety of settings. She has authored nine books, and more than 100 articles for professional and consumer publications, and is a key opinion leader and sought-after speaker. She has been featured in USA Today, on CBN, and is Past President of the American Association of Diabetes Educators. Tami was named "Diabetes Educator of the Year" by the Diabetes Care & Education dietetic practice group of the Academy of Nutrition and Dietetics. Tami serves on the Board for T-1 Today, Inc. Learn more about Tami and her work at www.TamiRossRD.com or connect on social media @tamirossrd.
Christina Roth is the Chief Executive Officer and Founder of the College Diabetes Network (CDN), a national nonprofit organization whose mission is to provide innovative peer based programs which connect and empower students and young professionals to thrive with diabetes. Diagnosed with type 1 diabetes at age 14, Christina became an active patient advocate while in college where she started CDN as a campus group in 2009. Due to the overwhelming response to the initial group, Christina expanded CDN into a national non-profit organization serving young adults with diabetes. After graduating from the University of Massachusetts Amherst, Christina worked at the Joslin Diabetes Center and consulted for the T1D Exchange. Christina served as President of CDN until 2013, when she was appointed CEO of the organization. As CEO, Christina frequently speaks on topics such as CDN's programs, research on the young adult population and how to meet their unique needs, non-profit management, women in business, innovation, and start-up organizations.
Desmond Schatz, MD, is Professor and Associate Chairman of Pediatrics, Medical Director of the Diabetes Center and Director of the GCRC at the University of Florida, Gainesville. He has been involved in Type 1 diabetes research since the mid 80s and has published over 200 manuscripts, the majority related to the prediction, natural history, genetics, immunopathogenesis and prevention of the disease, as well as the management of children and adolescents with Type 1 diabetes. He is the Principal Investigator (PI) on several JDRF and NIH awards. He is PI on JDRF funded studies aimed at reversing Type 1 diabetes using autologous stem cells (cord blood) and is currently PI the of the University of Florida Clinical Center participating in the NIH-funded TrialNet. He serves as co-PI on a Program Project Grant looking at the immunopathogenesis of Type 1 diabetes, and also serves as co-PI for the NIH-funded international newborn genetic screening (TEDDY) program in North Central Florida. Dr.Schatz has served in numerous capacities for the American Diabetes Association and on study sections and site visits for the JDRF and NIH. He also serves on the external advisory board for the NIH- and CDC-funded SEARCH study and the TODAY study in youth with type 2 diabetes and on the JDRF-funded Australian INIT II studies. He was awarded the Mary Tyler Moore and S Robert Levine JDRF Excellence in Clinical Research Award together with his colleagues, Mark Atkinson and Mike Haller as well as the 2009 Cure Award from the American Diabetes Association.
Gary Scheiner, MS, CDE, is owner and Clinical Director of Integrated Diabetes Services, a practice located just outside of Philadelphia specializing in intensive insulin therapy and advanced education for children and adults. He and his staff provide consultations throughout the world via phone and the internet. Gary is a Masters-level exercise physiologist. He has been a Certified Diabetes Educator for 19 years, and served as the 2014 Diabetes Educator of the Year. He has had type 1 diabetes for 30 years and makes personal use of insulin pump therapy and CGM. Gary has written dozens of articles for diabetes trade publications and six books, including the popular Think Like A Pancreas - A Practical Guide to Managing Diabetes With Insulin. He lectures nationally and internationally for people with diabetes as well as professionals in the healthcare industry. In addition to serving on the faculty of Children With Diabetes and the Board of Directors for JDRF, Gary volunteers for the American Diabetes Association, Diabetes Sisters, and Setebaid Diabetes Camps. Gary has been happily married for 25 years and has four wonderful kids. A fitness fanatic, he enjoys playing basketball, running, cycling and cheering on his Philadelphia sports teams.
Chris Schuh was diagnosed with type 1 diabetes at age 30. Over the years, managing her diabetes became increasingly difficult. First she became insulin resistant, causing her blood glucose levels to skyrocket. Then she suffered with devastating lows as a result of severe hypoglycemia unawareness. An executive with a statewide association in Florida, Chris could no longer travel alone and she feared for her life. Finally, a small article she read while sitting in her endocrinologist’s office nearly twenty years ago changed her life: the Diabetes Research Institute was recruiting patients for a new islet transplant study. After contacting the DRI, undergoing the screening process, and being selected as a candidate, Chris received an islet transplant in 2001 and became insulin-independent for five years. Thereafter, she received a second infusion of islets. This past February, 2016, Chris, 64, visited the DRI in Miami for a post-transplant follow-up celebrating 10 years of freedom from insulin injections.
Joe Solowiejczyk, RN, MSW, CDE is a diabetes nurse educator and family therapist who has has been working as a clinician in the diabetes field for over 35 years. In addition, he's a "person living with diabetes, type 1" for over 50 years. He is author of the book A Type 1 Diabetes Guide to the Universe and is president and founder of A Mile In My Shoes, a consulting company that provides counseling and education to patients and their families as well as training and supervision for healthcare professionals. He is a nationally and internationally well-known public speaker and trainer, integrating his personal experiences of living with diabetes into unique and creative treatment strategies for adults and families. As a Diabetes Educator and Family Therapist he specializes in making the link between how families communicate and support each other to how children manage and take care of their diabetes, helping both children and families cope more effectively with the daily challenges of living with diabetes. He has a particular expertise in working with teens who are having difficulty with their diabetes, helping them and their families adopt more effective coping strategies.
Kerri Sparling has been living with type 1 diabetes for over 28 years, diagnosed in 1986. She manages her diabetes and lives her life by the mantra "Diabetes doesn't define me, but it helps explain me." Kerri is a passionate advocate for all-things diabetes. She is the creator and author of Six Until Me, one of the first and most widely-read diabetes patient blogs, reaching a global audience of patients, caregivers, and industry. Outside of her blog, Kerri's work can be found at diaTribe, Animas, and in diabetes outreach like JDRF's Countdown magazine, in addition to her extensive diabetes YouTube channel. Well-versed in social media and its influence on patients, Kerri presents regularly at conferences and works full-time as a writer and consultant. Her first book, Balancing Diabetes (Spry Publishing), was published in 2014. Kerri and her husband, Chris, live in Rhode Island, USA with their daughter.
Diagnosed with type 1 diabetes at six years old in 1997, Lauren Stanford has been an advocate for treatments and a cure almost since that time. She has testified before Congress twice, once to a joint Senate committee representing not just all diabetes patients, but all patients in need of cures, and was ChairKid of JDRF's Children's Congress 2005. Her long friendship with the late Senator Edward Kennedy helped him lead the charge for funding of research and the passing of the stem cell bill. he chose her to speak in his tribute at the 2008 Democratic National Convention as well. Lauren also spearheaded "Got Islets," one of JDRF's most successful national walk teams, and completed her first JDRF Ride to Cure Diabetes last summer. She is chairing the Washington DC JDRF Walk this year. Named the top student volunteer in America By the Prudential Spirit of Community Awards and a top future national leader by do something.org, Lauren is now a health care policy advocate for HCM Strategists in Washington DC, where she represents the Christopher Reeve Paralysis Foundation, Dexcom, the New York Stem Cell Institute, and more. She dreams of one day running for Congress. She loves to go back and visit her hometown of Plymouth, MA and is a season's pass attendee at Washington Nationals games, which is okay with her mom since the Nats are not in the American League. The family hopes the Nats meet the Red Sox in the World Series this year (the Red Sox will win).
Diagnosed with type 1 diabetes at the age of 10, Elizabeth Stein was determined not to let diabetes negatively impact her life. She connected with the local American Diabetes Association and created an annual benefit show and nonprofit organization, "Dancing for Diabetes." What started as a small neighborhood event quickly transformed into an annual show hosted at Seminole High School and a 501c3 nonprofit organization. In the fall of 2015, Dancing for Diabetes will produce the 15th annual show, due in large part to the loyal supporters, performers, and audience members. Elizabeth has proclaimed that Dancing for Diabetes will continue until a cure is found. Alum of Seminole High School, the University of Florida (Bachelors) and the University of Central Florida (Masters), Elizabeth is currently the Firm Administrator of a large Orlando Law Firm.
Ben Stroud, age 27, has been living with diabetes for 17 years, and has been pumping for over 10 years. Born in the northeast, and raised in the southeast and SoCal has given him an appreciation for the country and a hunger for travel. A graduate of the LA Film school, Ben has been working in the industry, making television commercials, short films, and working on television programs. Ben has been attending FFL since 2002 and a volunteer for over six years. Ben currently resides in Brooklyn, New York.
Adam Town, BSN, RN, is a Registered Nurse who graduated with a Bachelors of Science in nursing from the University of Cincinnati. He currently works in a hospital where he lives in West Chester, Ohio. Adam is a husband to Marissa, who has had type 1 diabetes since she was two, and father to Connor. He has always enjoyed being a mentor and role model for children and loves to help the families at CWD conferences.
Ashby Walker, PhD, serves as faculty in the Department of Health Outcomes and Policy and the Institute for Child Health Policy in the College of Medicine at the University of Florida and holds a courtesy appointment in The Department of Pediatrics at the University of Florida. Dr. Walker's areas of research include medical sociology and health disparities with a particular focus on pediatric diabetes and the role of social capital in determining health outcomes. Dr. Walker coordinates the research components of the Florida Healthy Kids program evaluation team, which examines quality of care delivered to children enrolled in this statewide initiative. She is the lead author on recent manuscripts published in the International Journal of Pediatric Endocrinology and Clinical Diabetes. Dr. Walker has taught a wide range of classes including The Sociology of Food and Eating, Medical Sociology, and Research Methods. She is the recipient of five teaching awards (Emory University 2005, and Mars Hill University 2009, 2010, 2012, 2013) and is a former Sloan Research Fellow and served as the Chair of Social Sciences at Mars Hill University. Dr. Walker will be presenting "Type 1 diabetes through two lenses: comparing adolescent and parental perspectives with photo voice" during Friday's Dessert with the Faculty.
Jill Weissberg-Benchell, PhD, CDE, Pediatric Psychologist, Professor of Psychiatry, Northwestern's Feinberg School of Medicine, Chicago, Illinois. She has been a certified diabetes educator for over 20 years and is an author of numerous research articles, and a co-author of a book on transitioning from pediatric to adult care. Dr. Weissberg-Benchell works with children, teenagers and their families to facilitate adaptation and coping with diabetes and other chronic conditions.
Charles E. Wiedmeyer DVM, PhD, DACVP is an associate professor of veterinary clinical pathology at the University of Missouri, College of Veterinary Medicine in Columbia, Missouri. He earned his veterinary degree and PhD in veterinary pathology from the University of Illinois. In addition, he is a board-certified veterinary clinical pathologist. Dr. Wiedmeyer's specialty is applying technology to better monitor diabetic veterinary patients. His emphasis in this field is working with dogs and cats but has experience with horses, cows and pigs. Dr. Wiedmeyer has published numerous articles and given many presentations regarding the use of continuous glucose monitoring in veterinary patients and is considered the authority on this subject as it relates to veterinary medicine. Besides research, Dr. Wiedmeyer teaches veterinary students and offers leadership mentoring to a wide diversity of individuals within the veterinary profession.
Jamie R. Wood, MD, is an Associate Professor of Pediatrics at Case Western Reserve University School of Medicine. She is the Medical Director of the Diabetes Program and the Mary Blossom Lee Chair in Pediatric Diabetes at Rainbow Babies & Children’s Hospital in Cleveland, Ohio. She is a pediatric endocrinologist that specializes in the clinical care of youth with type 1 diabetes. Dr. Wood is involved in many clinical research projects that focus on clinical outcomes, emerging therapies, and transition to college and adult endocrinology. One of her favorite places to be is diabetes camp. At Rainbow Babies and Children's Hospital she directs support groups, family retreats, College Prep Events, and diabetes education classes. Dr. Wood loves working with and caring for youth and families that live with type 1 diabetes -- her goal is to work as part of the team that manages diabetes so that the child, adolescent, or young adult can do anything they set their mind to.
Crystal Crismond Woodward is the Director of the American Diabetes Association (ADA)'s Safe at School initiative based at its Home Office in Alexandria, Virginia. Crystal is considered a national authority on the rights of students with diabetes and has spoken at conferences and forums throughout the United States and internationally on how to effectively advocate on behalf of students with diabetes, training hundreds of parent advocates, attorneys, and health care professionals. A parent of a child with diabetes, Crystal began her advocacy as a volunteer for ADA when she successfully led the effort to pass the first state diabetes school legislation in the country providing comprehensive coverage for students with diabetes in Virginia and has since worked tirelessly to pass Safe at School legislation in 30 states including the District of Columbia. Crystal is a contributor to many diabetes publications, is a member of the Virginia Diabetes Council and serves on a number of other diabetes and youth advisory boards and committees.
Friends for Life Orlando 2016 Conference Introduction - Registration - Sponsors - Exhibitors - Convention Center Map Página Principal - Registración - Facultad Sesiones Español Faculty: Parent & Adult - Youth - Spanish Track - Grandparents - Nightscout - Sports Central - Retinal Screening - CWD Staff Schedule: Parents and Adults - Youth - Meet Ups - Childcare Form - FAQs 4th of July Fireworks Fundraiser - You're a CWD Star! - Tribute Ads - Docu-Diabetes II Call for Movies
Reports from 2015 - 2014 - 2013 - 2012 - 2011 - 2010 - 2009 - 2008 - 2007 - 2006 - 2005 - 2004 - 2003 - 2002 - 2001
|Return to the Top of This Page|
Last Updated: (none)
This Internet site provides information of a general nature and is designed for educational purposes only. If you have any concerns about your own health or the health of your child, you should always consult with a physician or other health care professional.
This site is published by T-1 Today, Inc. (d/b/a Children with Diabetes), a 501c3 not-for-profit organization, which is responsible for its contents. Our mission is to provide education and support to families living with type 1 diabetes.
© Children with Diabetes, Inc. 1995-2018. Comments and Feedback.